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Epilepsy Phenome/Genome Project (EPGP)

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1 Epilepsy Phenome/Genome Project (EPGP) on Tue Oct 20, 2009 3:16 pm

EPGP


Hi all,

I am writing to tell you about the Epilepsy Phenome/Genome Project (EPGP). Our study is the largest ever created to identify the genetic causes of idiopathic and cryptogenic epilepsies. We also seek to identify genes associated with an individual's responsiveness to seizure medication. The National Institutes of Health is partnering with epilepsy centers, advocacy groups, and families across the U.S. for this 5 year study. If you would like to learn more, please visit our website at www.epgp.org. You can also call our toll-free line: (888) 279-EPGP.

EPGP is looking for participants who:
1) Have epilepsy and also have a brother or sister with epilepsy
OR
2) Have seizures due to Lennox-Gastaut Syndrome, Infantile Spasms, Polymicrogyria, or Periventricular Heterotopia. (No sibling required, but both parents must also agree to participate.)

Participation entails donating a small sample of blood, answering questionnaires, and allowing researchers to review your medical records. There are numerous safeguards in place to protect your personal health information and to ensure your confidentiality. Furthermore, participation can be coordinated remotely. Therefore we do not require our participants to travel whatsoever.

If you are interested in participating or would like more information, please visit our website, www.epgp.org, call our toll-free line, (888) 279-EPGP, or email us at info@epgp.org. Be sure to include that you heard about EPGP through The Epilepsy Support Group. Thank you in advance for your consideration. With your help and support, studies like ours will be able to unlock the mysteries of epilepsy, improve treatment methods, and eventually pave the way towards a cure.

Best regards,

The EPGP Team
Tel: (888) 279 EPGP
Email: info@epgp.org
Web: www.epgp.org

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